Web Links: Patients Support Groups
|Blood Diseases Support|
|Have questions about your blood disease? Support and information is given to all who have or care for blood diseases.|
|CBCs R US|
|Support Group, based in Seattle, for patients living with Myeloproliferative Disorders (MPDs) and their family and friends.|
|The MEJ Thrombocythaemia discussion forum is the only message board purely dedicated to Thrombocythemia. Topics are archived into yearly folders, and are closed off at the end of the year. This allows archived topics to be viewed, but not responded to within the archive.|
|Italian support group for patients with chronic blood disease and for their family, relatives and friends.|
|MPD Myeloproliferative disease support|
|Open to those with myeloproliferative disorders, their friends and families, healthcare professionals and the just plain ole curious. Myeloproliferative disorders include Essential Thrombocythemia, Essential Thrombocytosis (ET), Polycythemia Vera (PV), Myelofibrosis (MF / AMM). polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis.|
|Myeloproliferative Disorders Australia (MPD-Oz) website has been established to provide information about Myeloproliferative Disorders and to promote and share Australian specific resources and to provide support to people with Myeloproliferative Disorders and their families.|
|MPDchat and MPNchat|
|Come join us! We are an International email MPD/MPN Support group for those with Essential Thrombocythemia, Polycythemia Vera, and Myelofibrosis. We remember exactly what it was like to have more questions than answers! Here, you'll meet people that have 'been there and done that' with hearts that under- stand when it seems no one else does.
|MPN Education Foundation/MPN-NET|
|Patient support group for information and patient education.|
|MPN forum Magazine & MPN Quarterly Journal|
|MPNforum Magazine and its companion MPN Quarterly Journal are open source publications entirely managed and staffed by patients and caregivers with the volunteer participation of scientists, physicians and healthcare providers. MPNforum is an international on-line monthly magazine devoted to myeloproliferative neoplasm patients and caregivers.
Beyond publications, the MPNforum supports the MPNclinic, maintains a List of Patient Recommended Hematologists, and advocates for research and support projects on behalf of the MPN community. The magazine and an extensive catalog of articles is available free, without subscription, at www.mpnforum.com. The MPN Quarterly Journal, devoted to in-depth scientific discussions and reviews, is at www.mpnjournal.org.
|MPN Voice - UK MPN Patient Support Group|
|MPD Voice's is to provide clear and accurate information and emotional support to everyone who suffers from a myeloproliferative disorder. We've also recently begun funding research towards better treatments – and we hope one day a cure. MPD Voice received a UK-wide award for innovative service to MPD patients in 2009.|
|Myeloproliferative Disease Support Group and Mailing List|
|Myeloproliferative Disease Support Group and Mailing List - Information on chronic myelogenous leukemia, polycythemia vera, essential thrombocytemia, agnogenic myeloid metaplasia, myelodysplasia, mylelofibrosis. For patients and health professionals.
SIGNUP and MPD SUPPORT ARCHIVES: http://www.mpdsupport.org/